We had our weekly meeting with Dr. Adatia, he is in charge of the PCICU, and he told us that everything about Grace is going great right now. He also told us that they will be trying to take Grace off of the ventilator sooner rather than later...
Now, he is the one who told us last week to expect a rough couple of weeks!
... we looked at each other with mild shock, and he clarified. He wants to take her pressure setting from 16 down to 8 - one point per day - and after that reduce the breath per minute rate to ten (or so) over the next few days. So, the sooner he was talking about is actually about ten days away!
And then, after we relaxed, Dr. Adatia let us know that most babies do not just get off the ventilator easily after being on for as long as Grace has been. He said that we should expect it to be an off and on trial for some time to come... but, I think we'll let Grace have the final word on this.
She continues to look better everyday. The scars from her first surgery are almost all just pink lines now. They are getting smoother all the time... sometimes we go to lunch and when we get back it seems like she has progressed a day.
Jackie got to hold her for the second time yesterday afternoon! With big brother Adam sitting right beside them.
She has an IV line, a feeding tube, and a ventilator and that is all! Most of the tubing and wires and stacked up medications are gone now and she is moving more and more. She got to sleep on her tummy for a big chunk of yesterday.
On Monday her nurse said that they will bump her up to a crib... progress in accomodations.
We have more pictures and will post them soon. Thanks again to everyone out there with a prayer for Grace.
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Grandma and Grandpa Truhe finally got over their colds and flu so had the chance to visit on Saturday evening - spent time with Grace and then took David, Jackie and the other three to dinner. We had a great time - Adam, Coco and Miranda trying to tell us all the things that were happening to Grace and them! What a joy to hear such happiness and love.
We hadn't seen Grace in nearly a month -- WHAT A CHANGE! She is beginning to look like a normal little girl now that all the tubes and wires are being removed. As far as Grandma is concerned she will only look normal when we get to hold her. We were lucky enough to see her on her stomach -- she LOVES it! She pulls her little legs up under her and just settles in for a nice nap - you can just see that contended look on her face. We also learned that she dislikes wet diapers as much as she likes being on her stomach.
Now that the hands and feet are free from all of the wires we can finally see that she has the "Truhe" toes...so sorry Grace!
She is absolutely gorgegous and we continue to be amazed at how fantastic she is doing.
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