Hi everyone,
Another update this evening. Grace had another good day today. The discussion today is that they are moving the arterial line from her belly button to her arm. (I am not certain if this has already happened or not.) Apparently this is because they are worried about either a blood clot or "burn spot" in Gracie's toes. A burn spot isn't an actual burn, more like either dead blood in the toes, which if it doesn't get better they might lose the toes. Moving the arterial line is due to the fact that if you leave the line in the belly button, there are too many organs in close proximity, and you risk a blood clot going into a vital organ. So by moving it to the arm, they would have time to respond if she still did have a clot. They also are hoping to close her up from the last surgery tomorrow, will find out from surgical team if that is able to happen.
Part of the decision around closing her up is whether her fluid levels have dropped enough. The blood pressure needs to go down, but good signs are that her kidneys are still functioning, she is still making pee, they are slowing weaning off of drugs, the ventilator, etc.
Good thing to report is that Gracie is definitely responding to her mom. She responds with Jackie in the room by squeezing her finger, she responds to voices and she seems to just get calmer whenever Jackie is around. The kids were all able to see baby Grace both yesterday and today and were happy to get to do that.
Another update this evening. Grace had another good day today. The discussion today is that they are moving the arterial line from her belly button to her arm. (I am not certain if this has already happened or not.) Apparently this is because they are worried about either a blood clot or "burn spot" in Gracie's toes. A burn spot isn't an actual burn, more like either dead blood in the toes, which if it doesn't get better they might lose the toes. Moving the arterial line is due to the fact that if you leave the line in the belly button, there are too many organs in close proximity, and you risk a blood clot going into a vital organ. So by moving it to the arm, they would have time to respond if she still did have a clot. They also are hoping to close her up from the last surgery tomorrow, will find out from surgical team if that is able to happen.
Part of the decision around closing her up is whether her fluid levels have dropped enough. The blood pressure needs to go down, but good signs are that her kidneys are still functioning, she is still making pee, they are slowing weaning off of drugs, the ventilator, etc.
Good thing to report is that Gracie is definitely responding to her mom. She responds with Jackie in the room by squeezing her finger, she responds to voices and she seems to just get calmer whenever Jackie is around. The kids were all able to see baby Grace both yesterday and today and were happy to get to do that.
(Miranda and Colette were so happy to finally see their baby sister)
(Adam drew a picture for Gracie Ann)
We'll keep you posted on any new items as soon as we hear. Keep up the thoughts and prayers.
3 comments:
Jackie & Dave - my prayers and hugs go out to you both during this difficult time. Grace is absolutely beautiful and has the best family around her to help her along this journey. You are in my heart and I just wanted you to know that I'm thinking about you and I'm here if you need me for anything!!
Love always,
Michele Merk & Family
Jax and Dave,
We have been following the blog every day and hope the good news continues. She is absolutely gorgeous! Just like the rest of the girls. She seems to be quite a fighter too! We wish we were closer to help but you are surrounded but family and friends. We are sending our prayers that the good news continues! All our love,
Sherie, Bill, Willy and Alex
Dearest Truhe Family,
You are in our daily prayers and thoughts. Grace is BEAUTIFUL! She is working hard to stay strong because of her wonderful family and friends surrounding her with love. How precious it is the way she responds to you, Jackie! Please let us know if there is anything we can do for you all... Sending love and xo to you...
The Cassara Family
Mario,Carrie,MM, Gianni&Grayson
PS Thank you, Chaundra, for creating this blog...YOU are a precious friend to them!
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